A diagnosis of Ehlers-Danlos Syndromes (EDS) or Hypermobility Spectrum Disorder (HSD) is not just a label. It is validation, credibility, and often the key to accessing proper care. On last week’s episode of Bendy Bodies, I talked with Lara Bloom, CEO of The Ehlers-Danlos Society, about why naming and classification matter deeply for people living with these conditions. Scientists may see terminology as a technical choice, but for patients with EDS and HSD, the name determines whether their symp

👉 Did you know that hypermobile Ehlers-Danlos Syndromes (hEDS) and Hypermobility Spectrum Disorders (HSD) are clinical diagnoses without a clear biomarker? During Pain Awareness Month, it’s important to understand that while genetic testing isn’t usually required for hEDS or HSD, there are certain red flags that may point to the need for further evaluation. (You can find these red flags outlined on my website!) Raising awareness about these nuances helps patients and providers alike get closer