Indigenous Peoples are increasingly being sought out for research partnerships that incorporate Indigenous Knowledges into ecology research. In such research partnerships, it is essential that ...

The PHG Foundation warmly welcomes the recently published WHO principles for human genome data collection, access, use and sharing. It is a timely and important contribution to global governance, ...

Denver Health’s experience with more inclusive self-reported race and ethnicity data collection offers lessons for other health systems, and highlights the need for guiding principles for data equity.

The FAIR principles, which provide foundational guidance for sharing data and metadata, were published in Scientific Data in 2016 (Wilkinson, et al). Since then, the core concepts of Findable, ...

Safety, security, accuracy, reliability and confidentiality of personal information remain at the top of the priority list of African countries working on improving their data governance frameworks.